Dementia Support Groups in India
Finding a dementia support group can help you deal with the challenge of caregiving for a loved one with dementia.
Seeing a loved one’s decline into dementia or Alzheimer’s disease can be heart wrenching. It can also mean that someone from the family has to take on the role of a caregiver. The task is challenging, rewarding and exhausting at the same time and several caregivers feel the need to connect with others in the same situation. Becoming part of a Dementia Support Group can help you learn to navigate the situation better and give you a peer group dealing with similar issues.
What is a dementia support group?
The aim of dementia support group is to provide the care givers an environment of support and platform to share their feelings.It is essentially a group for the people who are taking care of Dementia patients. The group helps the caregiver understand and cope with the complexities of the disease, provides them with a supportive atmosphere where they can express the stress of taking care of their loved ones with Dementia.
Why is it needed?
Dementia is characterised by a progressive decline in cognitive, physical and functional abilities. As a dementia patient loses one ability after another, a caregiver has to face tests of stamina, problem solving, and resiliency. With increasing responsibilities it is easy to become overwhelmed and neglect their own health and well-being. The burden of caregiving can put caregivers at increased risk for significant health and psychological problems. A Dementia support group is a safe place for caregivers to meet and develop a mutual support system. The care givers can gain information on methods of coping with the disease. We bring you some Dementia Support Groups across India.
Samvedna Senior Care
Gurgaon, Haryana
This support group is for families of patients of Dementia and the objective is to share knowledge and information on Dementia and help families deal with the challenges associated with this illness. A typical meeting involves sharing and participating in activities and singing and dancing together. Once in a while an expert is invited to talk about relevant issues at the meeting. Members are asked to share their story and instances like what were the first symptoms they noticed in their loved one and how did they accept when their loved one was first diagnosed with dementia. They are also asked to share instances of success or failures in caregiving that other members can learn from. Information on latest research in Dementia is also shared with the members.
Nightingales Medical Trust
Bangalore, Karnataka
Email: dementiabangalore@gmail.com
The support group meetings are held with minimum 15-20 caregivers at various locations around Bangalore for two to two and half hours, usually on a Saturday. It is open to all, family & caregivers, students working with elders or anyone interested in knowing more about dementia. The sessions begin with a group discussion and open forum where everyone is asked to share their experience, the daily schedule at home and other issues. All this is followed by a small talk by an expert who has been invited and deals with various issues over the different sessions. Members try to find a solution towards caregiving in the midst of busy working lives and share tips with each other on behavioural patterns, healthcare tips, etc. Members have even formed a group on the messaging service Whatsapp and stay in touch with each other. You can email them to find out the date for the next meeting.
ARDSI, Hyderabad, Deccan Chapter Office & Dementia Activity Centre
Hyderabad, Andhra Pradesh
Email: ardsihyd@gmail.com
9618527072, 9004528557, 9246519063
Alzheimer’s and Related Disorders Society of India Hyderabad (ARDSI) has a centre equipped for persons with dementia. It has an associated memory clinic. Please do check their very useful website listed above. For monthly caregiver support group meetings in Hyderabad, contact them on email or call.
Deenanath Mangeshkar Hospital
Pune
Tel: 020-40151000/66023000 (extension 1059)
The hospital conducts various Dementia Support Services. Memory clinics, guidance and counselling, memory improvement and memory exercise programs, and Alzheimer’s support group meetings, dementia research, and dementia awareness. Call them to know dates and timings.
Echoing Healthy Ageing,
Mumbai
E-mail: info@echoinghealthyageing.com, Ph: (+91) 9167 61 3665
Contact person: Amrita Patil Pimpale
Echoing Healthy Ageing is a social enterprise working in Dementia care sector, focusing on home based therapies, counselling & Dementia care training for family carers and professionals. This includes counseling after the diagnosis, training for family carers and healthcare professionals, care planning assistance, and activity planning. They have regular support group meetings. Contact them to know more.
Much of the information on this page is courtesy the website Dementia Care Notes, run by Swapna Kishore, one of the foremost dementia resource persons in India. For a complete and constantly updated list of city-wise dementia care resources, which also include support groups, please check https://dementiacarenotes.in/resources/city-wise/
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Good value posts.thank you
Are there support groups in Chennai? Look forward to leads.
Hi Pria, Kindly contact ARDSI – Chennai Chapter
The Memory Clinic,
D-89 III Street, Anna Nagar East
Chennai – 600 102, TAMIL NADU
Tel: +91 44 2620 1123, +91 44 2663 3143
email – chennai@ardsi.org
The DEMCARES project of SCARF (Chennai) has regular support group meetings in Chennai. There is also a forum of caregivers that meets called SAND, and there are other dementia resources also, for counselling and support. You can get contact information and brief basic descriptions for these at http://dementiacarenotes.in/resources/city-wise/dementia-chennai-coimbatore/
Thanks Swapna for the response. We are sure Pria will find it useful. Look forward to hearing from you often. We shall also keep you posted on any queries that may belong to your domain.
Regards
Nidhi & Reshmi
We have developed an app to help caregivers to coordinate care tasks and reduce the stress. It is used both by caregivers for senior and/or dementia patients. Its not the only solution but i suggest people try tech solution to help. Our app is available for iPhone and android download links available at the http://www.huggzy.com website.
My wife is suffering from dementia since 2013,regular treatment is going on but condition is declining day by day.I want to know whether there is any support group in and around Pune and Nagpur. I want help . Dhrub Pandey.
Dear sir,
We can try to find support groups in Pune and Nagpur and get back to you.
Regards,
Silver Talkies Team
Dear
Is there any support group in Hyderabad, India?
For Pune, try contacting Mangala Joglekar at Dinanath Mangeshkar Hospital who holds support group meetings regularly, and will also be able to help otherwise. And/ or try other dementia resources listed on the page https://dementiacarenotes.in/resources/city-wise/dementia-pune/
For Hyderabad, try contacting ARDSI Hyderabad Deccan chapter. They hold meetings regularly and will also be able to help otherwise. They also have a mailing list. More details on them at http://dementiacarenotes.in/resources/city-wise/dementia-hyderabad/ (Also, see other dementia resources in Hyderabad on that page)
There are also online support groups on Facebook, etc. If you are looking for online groups, check out the section on “available online communities” on this page: https://dementiacarenotes.in/resources/other/#intlforums
You can also contact me in you want to know more about dementia or care aspects and the types of options/ help available in India etc. Use the contact form on https://dementiacarenotes.in to reach me.
We at Epoch Elder Care are an assisted living provider with focus on dementia care. We operate out of Gurgaon and Pune. Feel free to reach out to us.
Good value, Thanks for this post
There is an Alzheimer’s support group in Delhi by the name ‘Hope Ek A.S.H.A,’ a body registered in 2001. Its Founder and current President is Dr Sushma Chawla. the e-mail is hopeekasha2001@gmail.com and website is http://www.hopeekasha.org. They also have a care-givers WhatsApp group. The landline numbers are 011-2922 1714, 2933 8341
Is there any counselling available for Ahmedabad city? My father has dementia. I feel my mother needs counselling, she tends to go in a depression as the stages are progressing. She already has a care taker.
Dear Sushma,
Let’s find out more and get back to you. Meanwhile, you can look up https://dementiacarenotes.in/, an excellent resource for dementia caregivers in India and see if you could find something that suits your needs.
Regards,
Silver Talkies Team